Upcoming appointments and a haircut

There’s nothing too exciting to report on here, but I thought I’d let you know of a couple appointments coming up that I’m looking forward to.

This Monday evening I’m getting another brain MRI. You may recall that I had a brain MRI right before my Gamma Knife procedure on January 22nd and then another on February 22nd, and a comparison of those two MRIs showed that the metastatic lesion in my brain had shrunk significantly, from 9mm to 6mm. The MRI this coming Monday will be compared with the February 22nd MRI to determine if that lesion is continuing to shrink, staying unchanged, or growing. I don’t know when I’ll get the result, but I’ll update this blog when I do.

The second upcoming appointment is with my oncologist on April 20th. She’ll either want me to continue a few more chemo treatments, or temporarily discontinue chemo but continue with the immunotherapy, or she may come up with some other treatment plan. I’m hoping of course that she’ll temporarily discontinue the chemo treatments because I really need to recover from the disabling fatigue that the chemo causes. But I know she’ll recommend whatever is best for me in the long run.

My last chemo treatment was on March 30th and in the 12 days since then the only side effects I’ve noticed have been fatigue and itching. The fatigue started the day after the chemo, got worse over the next three or four days until I could barely function, and then started gradually subsiding. I still take at least two or three naps a day and get really tired in the evening but compared with chemo side effects many people suffer from, this is nothing to complain about.

The itching is caused not by the two chemo drugs but by the immunotherapy drug. They gave me a shot right after the last immunotherapy treatment that was supposed to prevent itching. It worked really well. I had some itching in both lower legs the evening after that treatment, but hydrocortisone ointment fixed that. There’s been no itching since then.

On perhaps a more interesting note, I got my first haircut today since losing most of my hair after my first chemo treatment. No, my hair hasn’t start growing back (it won’t until a few weeks after my last chemo treatment) but I had a lot of stray hairs sticking up all over the top of my head that gave me an unkempt look. So Joanie took me into our back yard and using a pair of scissors and the trimmer attachment from my electric shaver, gave me her very first haircut. She did a great job; it looks much better now.



Comments

  1. CLARA DAVIDMay 3, 2021 at 2:46 PM

    This comment has been removed by a blog administrator.

    ReplyDelete
  2. Cynthia MooreeMay 15, 2021 at 5:43 AM

    I had to always take mutum (pills) so I did not pee on my pants because I got so weak in my hands and legs as a result of the symptoms of this ALS disease. I depended on Walker to move a step after minutes of struggles with every step and moves. I also couldn't pick up a glass of water or anything that has weight because my hands were also weakened and twitching. I always felt sad and depressed with this disease because the doctor told us there is no cure and despite all efforts we made to help me improve I never got any better, I took riluzole to help me slow deterioration,he had to recommend a depression pill for me to always take when I'm sad. I never imagined in my life that I could get any better and have this disease totally reversed with natural herbs. We got introduced to Doctor Okolo which has helped so many other people with this disease too but it got me skeptical at a point but still ordered his medicine. I was given instructions to use the medicine and within a few weeks on this medicine I could already feel back strength in my muscles, all twitching and vibrations in my body stopped completely and after a time I could walk without a Walker, all the symptoms completely started reversing gradually. I am completely strong now and I've only been on this herb for three weeks. I will recommend this herbal solution to you if you have or know anyone who struggles with this disease because it's very very effective. Contact DR Okolo on drokolosolutioncenter@gmail.com  HIV/AIDS HERPES CANCER DIABETES Alzheimer NPH MND ETC

    ReplyDelete
  3. julietMay 16, 2021 at 10:53 AM

    I’m giving a testimony about Dr. KOKOBI, the great Herbalist, he has the cure to all manner of diseases, he cured my  breast cancer, though II went through different websites and I saw different testimonies about different spell casters and herbalists. I was like: ‘Many people have the breast cancer remedy, So why are people still suffering from it?’ I thought of it, then I decided to contact kokobiherbalremedycentre@gmail.com , I didn’t believe him that much, I just wanted to give him a try, he replied my mail and Needed some Information about me, then I sent them to him, he prepared it(CURE) and sent it to Airfreight Online Courier Service for delivery, he gave my details to the Courier Office, they told me that 3-5 days I will receive the package and i took the medicine as prescribed by him and I went for a check-up 1 week after finishing the medicine, I was tested for breast cancer negative, if you are a breast cancer patient or any cancer patient at all. Do me a favor for you to contact him and I will try my possible best to make sure you get cured, when you contact him, make sure you tell him that I referenced you.. contact him via: kokobiherbalremedycentre@gmail.com You can also message him on WhatsApp +254746618873 you can also call him via +2348114448587 website:https://kokobiherbalremedycentre.weebly.com  email me for more info @ juliethilton80@gmail.com

    ReplyDelete
  4. williampeterJuly 12, 2021 at 7:10 AM

    To be honest with doctor Twaha herbal medicine you are free from herpes virus disease we bless god almighty for sending Dr. Twaha Herbal Home to the world to help people cure this disease am so happy to found a good man like this God keep blessing you for me if you also need help from this good man kindly WhatsApp him via +2349038518881 or email him drlregbeyen10000@gmail.com

    ReplyDelete

Post a Comment

Popular posts from this blog

Some of you have requested information about Ken Elder’s service.  It will be held Thursday, July 22, 2021, 11 am at Crossings Community Church (in the Chapel) 14600 N. Portland Avenue Oklahoma City, OK 73134 405-755-2227   For information on the livestream or the recording, go to www.crawfordfuneralservice.com Click on Ken’s Picture or name and it will take you to his tribute page.   LIVESTREAM WILL BEGIN AT 10:45 AM ON JULY 22 ND AND RECORDING WILL BE AVAILABLE AFTER LIVESTREAM ENDS. https://vimeo.com/577245464/816086b4df
Read more

Lung Cancer

It started a few months ago with a chronic cough. Then shortness of breath became an issue. Three months or so ago I could play three hours of pickleball without any problems. A couple months later I’d be breathing hard after just one game. X-rays showed nothing concerning. Then, on Tuesday December 15, 2020 I went into a fairly violent coughing spell and coughed up a lot of blood. We (Joanie and I) went to the ER at the hospital where my pulmonologist works. After doing a CT scan of my lungs the ER doctor told us I have lung cancer. The next day I saw my pulmonologist’s PA. She said the CT scan results were “suspicious” for lung cancer but a biopsy would be required to confirm that. She scheduled me for a lung biopsy the following Monday. She also commented that it is extremely rare for a non-smoker like me to develop lung cancer. The following morning (Thursday December 17, 2020) I coughed up more blood. We knew there is an excellent pulmonary oncology team at the Stephenson Ca...
Read more

Metastatic Lesions in Lumbar Spine

Last Friday, June 18, MRIs were taken of my cervical, thoracic, and lumbar spines hoping they would point to the cause of extreme lower back pain. The expectation was that they would identify a pinched nerve or other nerve or muscle involvement that could be “fixed” simply with pain meds. Last Monday the 21 st I got my last radiation treatment for the lung cancer. At that same time Joanie got her last immunotherapy infusion for her breast cancer. It was a cause for celebration! Yesterday the 23 rd I got a phone call from my radiation oncologist’s nurse informing me that the MRI results show that the cancer has spread to my lumbar spine. The lower back pain I’ve been experiencing has been caused by those metastatic bone cancer lesions. Not much to celebrate there. This morning we met with my oncologist to discuss those results and develop a new treatment plan. That plan includes the following: Begin radiation treatments to my lumbar spine ASAP and increase the dosage of Fentan...
Read more